Today is when winter is finally coming down (Monday it snowed), and its rainy, cold.
I have a white poodle type dog that should be walking outside and if I take her out she will come back soaked, muddy and take me 1 hour worth of clean up......(suggestion for business, a play center, in doors for dogs! set it up, open one up, draw up some brochures and franchise it all over the place....advertise it the the Enzyte ads one sees at 3am in the morning on TV and it will go....Doggy Play Centers of America! )
I wanted to post 2 things on this blog entry:
1) How to NAVIGATE AND FIND data on a BLOG with 250 entries since August 2008,when I started it up? Also how to find articles and links which I have uploaded onto the site?
2) HUMOR AT BOTTOM (OR ATTEMPT AT IT!)
>when I started this blog, I really did not know what I was doing, or where it was going it, and how to leverage it. As noted in my initial entry, and one year mark, there were some overall goals and objectives in taking the time to develop this and making it public, posting my face and A LOT ON MY MEDICAL information PUBLIC for all to see (typically, I am private person and as this is done for the love of it!, one has to be very careful,
With the amount of Internet fraud and abuse, there is a lot of downside in posting ones pictures, information and heartfelt feeling at times, which can turn out to be an issue). So doing this was way out of my "comfort zone' but, I felt a need to stick my head out the window and as in Network Movie, yell as loud as I could "I am mad as hell and I am not going to take it anymore"!
That said, I begun to journalize my life and JOURNEY thru my NET Cancer Hell which many of the reader of this blog are experiencing, either as caretakers or patients. I started posting and collecting and finding data and before I knew it, I now have a 'boatload' of information on this type of platform, that was not meant for this much data and information. As noted, I would like to covert this into a web site; however, that does take time and effort and at the moment, it number #57 on my list of things to do with what is facing me.
In any event, I have been told my good friends and readers they love the blog; however, it is "hard to find information as there is so much of it on the blog". And they are right, so I have tried to do some things to make it easier to find information or look up data and actually get something out of the blog
.
So here are some helpful directions to guide you through this overdose of data:
1) Want to find an article, study or write up? Use the goggle search box IN THE BLOG, either on the top on the blog or the first search box on the left hand side:
Renal Carcinoid ,COM-Blog Search - Use this to find ENTRIES ON THIS BLOG ONLY!
There is a search box below this. You would enter the 'key word" or phrase and the search will be for the blog only! So if you were to enter "Rotterdam study" and hit enter, this is what you get :
Links to any story I have posted with Rotterdam. You will have to look through these summaries and click the link which may be the data you are looking for (I deleted a number of the search entry results to make this easier:
My journey thru Neuroendocrine Carcinoma Cancer Hell & Adventures ...Total Cost for entire treatments- $75000 4 treatments, scans $37500 (IF SEPARATE)=$112500 for treatments, which may last up to 40 months (Rotterdam study(on ...
www.renalcarcinoid.com/2009_08_01_archive.html
My journey thru Neuroendocrine Carcinoma Cancer Hell & Adventures ...TO GET ADDITIONAL INFORMATION ON PRRT, PLEASE REFER TO LEFT SIDE, DOWN AND LOOK FOR A SECTION WHERE THERE ARE LINKS ON PRRT - STUDIES, ROTTERDAM WEB SITE, ...
www.renalcarcinoid.com/.../prrt-information-erasmus-medical-clinic.html
My journey thru Neuroendocrine Carcinoma Cancer Hell & Adventures ...Nov 13, 2008 ... I have also researched the treatment in Rotterdam, .... >Clinic- MDAnderson- Dr Jame Yao- access to many new drugs in clinical studies. ...
www.renalcarcinoid.com/2008/11/treatment-with-dr-moviglia-t-cell.html
My journey thru Neuroendocrine Carcinoma Cancer Hell & Adventures ...Nov 14, 2009 ... EVEN WITH LARGE TUMORS, IT WORKS VERY WELL (SUPPORTED BY ME, BAD BERKA AND ROTTERDAM STUDIES). BY GOD, I DID IT! YOU CAN IT TO! ...
www.renalcarcinoid.com/2009/11/prrt-2nd-round-mini-results-is-prrt.html
My journey thru Neuroendocrine Carcinoma Cancer Hell & Adventures ...Aug 16, 2009 ... 1 Nuclear Medicine, Erasmus MC, Rotterdam, Netherlands 2 Nuclear ... 4-cycle phase I dose-escalating PRRT study with Y-TOC in patients (pts) ...
www.renalcarcinoid.com/2009/08/journal-of-nuclear-medicine-prrt.html
You will find the information you need by going this route....its in here, one just has to look for it. (BTW, for those interested in PRRT LU177 RESULTS ON PATIENTS IN ROTTERDAM, CLICK THE LINK ABOVE!) GOOD DATA!
II) IMPORTANT LINKS- I HAVE A TON OF LINKS RELATED TO THIS BLOG TOPIC AND I TIRED TO SEPARATE THE LINKS, MORE OR LESS, INTO THE TOPIC AREAS.
HERE IS WHAT THIS LOOKS LIKE:
Links- Carcinoid Foundations, WEB SITES, Clinical Trials WEB SITES.
>ENETS- Europe Net site- they are more advanced than US in this disease!The primary aim was to integrate basic and clinical research with teaching and to establish guidelines for the diagnosis and therapy of gastroenteropancreatic neuroendocrine tumors (GEP NETs)
>National Coalition for Cancer Survivorship-
>Web site- The Cancer Info Web Site- re: carcinoid, includes financial help, general info and links. A nice start to start your research!
>Canada- Carcinoid-NeuroEndocrine Tumour Society Canada- Maureen Coleman excellent resource and head of organization. Very active.
>Cancer- American Cancer Society
>Carcinoid Cancer Awareness Network- great for online conferences webinaire!
Each link is within the >(arrow) and by clicking, it will take you to the subject. I have the links in various category "blocks", ending with a "Miscellaneous section".
There is a lot of important links in all of these areas including studies, foundations, blogs, etc. You should review this to see what I have gathered in my "data mining" over the past year. Some of it is priceless, I think. This feature is on left side from middle on down.
III) BLOG ARCHIVES. This section is a summary of each posting, date and month. If you find something of interest, you would click the link and it will take you to the post within the BLOG. Here is what it looks like (this feature is on left side at bottom) :
Blog Archive- SEARCH FOR AN ARTICLE AND CLICK.
▼ 2009 (187)
▼ December (3)
Apple CEO Steve Jobs Thanks Donor - 9/9/2009- Vide...
PREVENT CHRONIC KIDNEY DISEASE VIA NEPHRON SPARING...
What do you talk to a cancer patient about?
► November (11)
UTUBE RENAL CARCINOID CHANNEL- BECOME A MEMBER FOR...
Opiate Painkillers May Encourage Spread of Cancer-...
Health care Reform, USA, Sarah Palin, & Musica! Pa...
AD LINK SUPPORTING HEALTH CARE REFORM (written by ...
There have been some GOGGLE ADs w/LINK on this blo...
PRRT 2ND ROUND- THERAPY RESULTS & MY TEST DATA-- I...
FRONTLINE REPORT- "SICK AROUND THE WORLD"- CAN THE...
MEDICAL NEWS TODAY- Lifestyle Choices Vs. Life Exp...
CARCNOID CONFERENCE- MONTREAL NOV 14 AND 15- PRRT ...
CNETS CANADA- CAD Conferences & Videos-Trmt of NET...
UTUBE Channel for CFCF on NETs and PRRT video! CON...
► October (14)
► September (16)
► August (21)
► July (16)
► June (20)
► May (30)
► April (17)
► March (11)
► February (13)
► January (15)
► 2008 (57)
► December (10)
► November (13)
► October (13)
► September (15)
► August (6)
IV) Other information:
There are other data in the blog that may be of interest for you:
UTUBE Videos and how to get to my channel - the FIRST TWO videos on the channel are taken from the Caring for Carcinoid Foundation channel. It is the Dr Baum PRRT video- please remember, there are 2 parts 1 is 40 minutes and covers the disease and imaging including PET Ct 68 scan and part 2 which is 25 minutes which covers PRRT therapy. Listen and watch this video 2 to 3 times as it is very important for understanding these topics. The UTUBE link will get you all the videos.
http://www.youtube.com/user/renalcarcinoidguy
Blogcast -Stupid Cancer Show -Click to listen to topics- its great for ALL AGES!- This is a Internet radio show and broadcasts on different cancer patients which I found of interest and entertaining.
S And P 500 & NET & Health Care Companies- companies that include the NET and cancer focused companies that should be of interest. It includes the companies that leased the rights for PRRT in the USA from Novartis, two small pharmacy companies that are doing research studies in EUROPE on Y90. I am not sure of who leased technology rights for lu177 and status. Click the link to the company to get stock information but you can find a link to the company web site and status drugs trials, new meds, etc....one way to tell if the small companies are doing something is look at the price! Upward movement would indicate positive activity! The companies of interest would be:
http://finance.yahoo.com/q/bc?t=1d&s=IPN.PA
http://finance.yahoo.com/q/bc?t=1d&s=MIPI
http://finance.yahoo.com/q/bc?t=1d&s=NVS
And other pharmacy companies I included...best way to understand where they stand on getting the USA close to the rest of the world with respect to NET therapies....
WHY IS PRRT NOT AVAILABLE IN THE USA?
MEDICAL NEWS TODAY HEADLINES- CANCER, DEPRESSION, HEADLINES-
Medical news with a lot of up to date data. There is a CANCER TAB, click that and you will find information on cancer and possibly NET or related articles.
There is plenty more data, just look for it, and you will find it! To be honest, with the links, this is a "one stop shop" web site for information, if you are searching for something relative to carcinoid/net disease. I hope you can leverage it for you benefit.
Lastly, remember to support the sponsors of the blog and click the ads! It will generate money, which in turn, I will DONATE ALL to cancer related charities and foundations. I post it all on the site so all can see where I sent the a small, but hard earned, contributions from the earnings in Goggle....
Thank you for all that took the time to support the sponsors!
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Finally, I got this email below from my cousin, and got a laugh out of it! Some of this from the net may be false, but after seeing and reading about Tiger Woods exploits and news, nothing would surprise me anymore.....so I believe this story to be true.....!
Its a homework assignment by a little girl. She turned in at school an assignment about what she wanted to he when she grew up! She drew a picture of her Mother, hard at work, and she wanted to be "just like her".
The Mother never checked it...until it came back from the teacher.....then there is a letter from the Mother explaining the entire situation to the teacher.....!
Its funny even if not true, however, Tiger in the church parking lot with a waitress from some diner?!?!? Also, why did they NOT get a sobriety test on this guy, asleep, bleeding, gurgling and in a state of confusion on the ground after an auto accident...???
Do you think the state attorney would say decline further testing a blood sample, if WE had rammed our cars in a fire hydrant and behaved as he did?
Folks, discrimination in this country is the COLOR GREEN! And being a great golfer!
Check your kids homework before they turn it into the school! This is an assignment of "what do you want to be when you grow up"?
(Here's the reply the teacher received the following day)
Dear Mrs.X,
I wish to clarify that I am not now, nor have I ever been, an exotic dancer.
I work at Home Depot and I told my daughter how hectic it was last week before the blizzard hit. I told her we sold out every single shovel we had, and then I found one more in the back room, and that several people were fighting over who would get it. Her picture doesn't show me dancing around a pole. It's supposed to depict me selling the last snow shovel we had at Home Depot.
From now on I will remember to check her homework more thoroughly before she turns it in.
Sincerely,
Mrs. X
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