(this is me two months after PRRT therapy, self portrait...please all comments on rugged, handsome looks welcome!
Note pic below on a few posts down as to how I looked in Thanksgiving day walk, on VEGF inhibitor, tumor laden and looking aweful like "Father Death.
I hope this blog and my story and data and your research and tumor cells will helps you also decide on this therapy...its worth it
(also, to be honest, the appearance change is part due to reduced tumor burden (to be clear, I still have a lot of tumors inside as I went with very advanced tumor and to getting off of the VEGF inhibitor.)
Note pic below on a few posts down as to how I looked in Thanksgiving day walk, on VEGF inhibitor, tumor laden and looking aweful like "Father Death.
I hope this blog and my story and data and your research and tumor cells will helps you also decide on this therapy...its worth it
(also, to be honest, the appearance change is part due to reduced tumor burden (to be clear, I still have a lot of tumors inside as I went with very advanced tumor and to getting off of the VEGF inhibitor.)
I HAVE SET UP A UTUBE CHANNEL (www.youtube.com/user/renalcarcinoidguy) WHICH YOU CAN ENROLL FOR FREE. I WILL BE POSTING VIDEOS OF INTEREST RELATIVE TO CARCINOID, NET TUMORS, KIDNEY, ETC AT THE SAME TIME YOU WILL HAVE TO PUT UP WITH MY TASTE IN MUSIC AS I WILL ALSO HAVE MUSIC VIDEOS.
I SIGNED UP FOR THE "CARING FOR CARCINOID CHANNEL" WHICH INCLUDES A NUMBER OF VIDEOS OF INTEREST, INCLUDING THE PRRT DR. RICHARD BAUM VIDEO AND OTHER VIDEOS FROM CFCF.
I ALSO WILL SEARCH FOR OTHER VIDEOS OF INTEREST TO POST (if you know of any, please write me). Also, there are a TON OF VIDEOS on CF,. CFCF and CNETS and other Carcinoid sites which are linked on the left side.
UTUBE IS JUST ANOTHER LEARNING AVENUE AND PATH TO EMPOWERE AND LEARN ABOUT THIS DISEASE, TREATMENTS AND OPTIONS.....NOTE: IT WILL ALSO INCLUDE MUSIC WHICH YOU CAN USE TO RECORD, and DOWNLOAD ONTO YOUR NON APPLE INC MP3 PLAYER (SANSA MAKES A GREAT PLAYER and CHEAPER), WHILE YOU ARE BEING TREATED, OR IN WAITING ROOM IN HOSPITALS!
EVERYTHING IN THIS SPACE IS FOR A REASON.
THE LINK IS ON THE TITLE (CLICK IT AND IT WILL TAKE YOU TO THE RENAL CARCINOID GUY CHANNEL) BELOW (ABOVE AND ON THE TITLE):
EXAMPLE OF WHAT IT LOOKS LIKE
http://www.youtube.com/user/renalcarcinoidguy
2 comments:
Steve: Smile a little. You got great PRRT results and that is something to smile about.
Your roomie from BB
Hey Rommie:
Good inout....however, after 1,8 years I am trying to get off of a OPIATE BASED PAIN MEDICINE and as anything with this damnm disease, it comes with a cost. Although I am slowly doing a glidepath downward on the doseage, it is hard and my mood is one of "do you wanna piece of me, you wammn piece of me"?!?!?!
Net, goal is if we run into each other again seeking the same goal in a land far away in January 2010, I want to be free of this medicine, if indeed once I get off I am CANCER PAIN FREE....as right now I am not sure if no pain is medicine based or the "golden bullet" we shared together one cloudy, rainy afternoon in September....
Net, Opiates are a godsend in controlling pain and helped me through VEGF drug (I could not have done it without it) and then the monster came into life and made it a misery...
May 2009 as I went to BB I was on 120MG of oxy, NOW DOWN TO TO 40MG and feeling it,esp. in the evening!
HEY, YOU WANNA PIECE OF ME??!?!?!?
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