Saturday, June 6, 2009

June 6 13 days afer treatment report

Saturday June 6 report- 13 days after treatment day in BB

I have been trying to recover since my long trip from Germany on Tuesday. Better put, I have been trying to rest and relax and recoup. But it has been had. First, my belly feels like its on fire, inside. Not sire its the roasting of the tumors, in my mind or combination of that, kidney, return trip, not sure, Bit I don't feel good, I am fatigued, down, tired, unable to dress or bath without help, constipated, low grade fever, no hungry, and may have a skin infection which I would from a cut or abrasion during my trip to Bad Berka and it got infected when I returned. I went to the Md on Friday, got a dose of Levaquin 250mg and made the mistake of taking it prior to talking to Dr Baum. After I ingested the medicine, it felt as if my body had been poisoned! WITHOUT THE DETAILS A TERRIBLE NIGHT! AND TODAY IN BED......AND YESTERDAY I WAS GOOD ENOUGH TO GO OUT, SUPERMARKET, FEDX KINKOS TO MAKE COPIES AND TALK TO SOME REALLY GOOD EMPLOYEES THAT NOW KNOW ALL ABOUT ME AND MY STRUGGLES BETWEEN THE FAXES, COPIES AND SHIPMENTS I MAKE.
i ALSO WENT TO THE MD WHICH WAS THE START ON MY HEATLH DECLINE.....THE KEY LEARNING, AS i WROTE DR BAUM IS THAT I COMMUNICATE WITH HIM PRIOR TO STARTING ANY MEDICATION. THE WONDERFUL THING ABOUT A 24 HOUR WORK A DAY MD, I WRITE HIM AND GET A RESPONSE VERY QUICKLY, WHICH I DID AT 4AM THIS MORNING AND RECEIVED SOMETHING BACK FROM HIM WITHIN AN HOUR!
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Net, I need to change antibiotics, send him a pic of my cut and infection for him to evaluate prior to taking it, and move forward. I just pray my night will not be the electric shock, hot flash, pain and nausea filled night as I did last night. I hope I do not as I need to rest, recover and recoup my strength~! Dr Baum told me it would take a while for recovery for me. As someone on the ail end of the disease, and after so many other treatments, my nody- kidney, blood, marrow are at the edge of tolerance for any more. As what Dr Baum and Bad Berka clinic gave was here is good new bad news a large dosage of potentially lethal radiation straight to the tumors......like in anything I have done in this journey, there is good news bad news. The good, tumors cells destroyed, I hope! The bad, when cells die , they release chemicals that are potentially dangerous, especially when I have such high uptake and large tumor burden. This I have to manage carefully with the help and leadership of Dr Baum and my other support MD's in Ohio! It also means bi weekly blood tests to be faxed to Dr Baum then monthly after July...its good he wants to keep tabs of me. I love that about him and what you should expect from your MD....caring and follow through!

OK, status listed, send me some karma and prayers and whatever else you have that could help me to get through this stage, please...its selfish, I know, but I need it, BAD.......
The good thing about enduring all of this is the fact I may have fired these damn things, hurt them bad, and its become a personal issue between those net tumors killing me and me! I hate them and hate what they have done to me and my family and my job and my finances, my job, and my kids and my life.....this, feels good in that respect....its like getting into a good fight, waking up with a black eye, sore back and pain throughout, but with the knowledge you have gotten the best of your opponent! That is how I feel......take that you SOB tumors!
have a good Saturday!

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