Saturday, November 28, 2009

UTUBE RENAL CARCINOID CHANNEL- BECOME A MEMBER FOR FREE! AND SEE PRRT AND CARCINOID INFORMATION AND VIDEOS(PLUS MUSIC VIDEOS)







(this is me two months after PRRT therapy, self portrait...please all comments on rugged, handsome looks welcome!
 Note pic below on a few posts down as to how I looked in Thanksgiving day walk, on VEGF inhibitor, tumor laden and  looking aweful like "Father Death.
 I hope this blog and my story and data and your research and tumor cells will helps you also decide on this therapy...its worth it
(also, to be honest, the appearance change is part due to reduced tumor burden (to be clear, I still have a lot of tumors inside as I went with very advanced tumor and to getting off of the VEGF inhibitor.)


I HAVE SET UP A UTUBE CHANNEL (www.youtube.com/user/renalcarcinoidguy) WHICH YOU CAN ENROLL FOR FREE. I WILL BE POSTING VIDEOS OF INTEREST RELATIVE TO CARCINOID, NET TUMORS, KIDNEY, ETC AT THE SAME TIME YOU WILL HAVE TO PUT UP WITH MY TASTE IN MUSIC AS I WILL ALSO HAVE MUSIC VIDEOS.

I SIGNED UP FOR THE "CARING FOR CARCINOID CHANNEL" WHICH INCLUDES A NUMBER OF VIDEOS OF INTEREST, INCLUDING THE PRRT DR. RICHARD BAUM VIDEO AND OTHER VIDEOS FROM CFCF.

I ALSO WILL SEARCH FOR OTHER VIDEOS OF INTEREST TO POST (if you know of any, please write me). Also, there are a TON OF VIDEOS on CF,. CFCF and CNETS and other Carcinoid sites which are linked on the left side.

UTUBE IS JUST ANOTHER LEARNING AVENUE AND PATH TO  EMPOWERE AND LEARN ABOUT THIS DISEASE, TREATMENTS AND OPTIONS.....NOTE: IT WILL ALSO INCLUDE MUSIC WHICH YOU CAN USE TO RECORD, and DOWNLOAD ONTO YOUR NON APPLE INC MP3 PLAYER (SANSA MAKES A GREAT PLAYER and CHEAPER), WHILE YOU ARE BEING TREATED, OR IN WAITING ROOM IN HOSPITALS!
EVERYTHING IN THIS SPACE IS FOR A REASON.




THE LINK IS ON THE TITLE (CLICK IT AND IT WILL TAKE YOU TO THE RENAL CARCINOID GUY CHANNEL) BELOW (ABOVE AND ON THE TITLE):
EXAMPLE OF WHAT IT LOOKS LIKE
http://www.youtube.com/user/renalcarcinoidguy

Monday, November 23, 2009

Opiate Painkillers May Encourage Spread of Cancer- article by Medical News Today (link on site)

Do Opiate Painkillers Encourage Spread of Cancer?




The link below is an article by MEDICAL NEWS TODAY, AN ONLINE MEDICAL NEWS WEB SITE THAT IS ONE OF THE BEST AROUND (IT TAKES NEWS ARTICLES BY CATEGORY BY INTEREST AREA--
THE WEB SITE IS ON THE BLOG ON THE BOTTOM LEFT, CLICK THE CANCER TAB)

This link article covers two studies presented at the "Molecular Targets and Cancer Therapeutics' meeting in Boston Massachusetts. It suspects that opiate drugs, given to cancer patients for cancer pain (e.g., morphine, oxycontin, etc), is suspected to cause cell proliferation, invasion and migration in cell cultures in mice.

This study also adds weight to the MEDICAL evidence that OPIATE BASED PAINKILLERS, ENHANCE THE ABILITY FOR CANCER CELLS TO GROW AND SPREAD!

There will be clinical studies to confirm these findings, and if done so, will not only drop the price and usage of this drug in the future, it will change the type of painkillers used for cancer patients in the future!

The article also outlines correlating information relative to patients (prostate and breast cancer) patients that were given regional rather than general anesthesia and had FEWER RECURRENCES. There was also additional information on patients which is of concern for cancer patients.

This is very concerning news, as opiates based pain relievers are a godsend for cancer patients, to live a better quality of life with cancer, a painful disease. It is important to understand, if these findings are correct, so you can therefor work with you MD's to find different options, or get off the meds, other than opiate based drug therapy for pain.

Please show this article to your  MD if you are taking opiate pain killers and have cancer. If I were you, and you can find an alternative, or quit, DO IT.
But talk to you Doctor and ensure you are aligned and working to in tandem with your before you do anything.

Great article, link to full article below:
http://www.medicalnewstoday.com/articles/171900.php

Friday, November 20, 2009

Health care Reform, USA, Sarah Palin, & Musica! Para cambiar los topicos...el conjunto Moenia! Tambien, mi plan de como yo me voy a convirtirme a un cuidadano de Espana y casarme con una mujer de Aleman (por el seguro de salud!!)




NOTE- why does Health Care need reform- tonight on 60 minutes, Sunday Nov today!


These are some YouTube videos from on of the col-lest Mexican electronic bands. (from someone w/Tube channel)

When you are alone, trying to figure out world crises, point spreads and the stock market,health care reform, prrt status and "how long do I have and what will it cost me"?, its great to listen to.....and forget....!

This BLOG is an all "full coverage web site"! I hope this blog entry tailors the ads based on the post, so it will start posting Ads about Latin music, tequilas (Tres Generaciones, my favorite w/slice of orange, yes orange, try it, you'll never go back!), Hot sauces (I can not eat anything without hot or jalapenos anymore- 2 weeks working in McAllen Texas in 1987 is all it took!- Tip- if you like, when in a movie, order Popcorn with side of Jalapeno peppers, pop then with your popcorn, ORALE!), and also ads for TALL Ladders, tall enough to get over the "black wall"  in Texas being built by Cheney's friends and company (Americas "Maginot Line")!

Goggle Ads


The ads will feed off key works on the BLOG POST, so this will hopefully change this crazy insurance reform ads which are popping up!

Note- If you please click the ads, they generate income, which I
GIVE TO CARCINOID/CANCER FOUNDATIONS AS
CONTRIBUTIONS! IT PAYS WHEN IT REACHES $100
SO i AM GETTING CLOSE AGAIN DUE TO YOUR HELP!

Why do I want to change the ads? Well, to be honest, we all need a break from the insanity of carcinoid and Nets, but most importantly the REAL INSANITY IS THE HEATLH CARE REFORM DEBATE and advertising going on AND "CITIZEN INTIATIVES", which, after much research, I NOW KNOW THIS REFORM IS NONSENSE and AM totally disappointed in!

One needs to "peel the onion" to understand how worthless this reform really is.......
In my work/career days, I used to COACH YOUNG PEOPLE THAT WORKED FOR ME ON THEIR WORK TO WATCH OUT FOR
"FORM VERSUS SUBSTANCE".

Well, in this particular reform bill, we have the following "camps":


1) Those opposed to any health care policy change--- ("KEEP YOUR HANDS OFF MY HEALTH CARE!".   Btw, I went to their web site and posted a blog entry, well written for a change, with links to the Front line story, and my account and journey through hell, pleading for folks to think about what they are being told to support, and reconsider or at least take a balanced view!.......
IT WAS NEVER POSTED! This from the group that claims "big Government interference, Obama censorship" and the like....) Welcome to the world of Mussolini tactics my "hands off" friends!).

All the non change is being supported and funded by medical equipment manufacturers, pharmaceutical, CRO's. Insurance and related companies, medical malpractice lawyers, medical collection companies, other countries EU whose prescription medicines we help keep low by paying so much for (see FRONTLING BLOG ENTRY A FEW POSTINGS BELOW -Swiss and comment on cost of medicines).
Net, this is funded by those "feeding off the trough" of what we call "the US health care system". That are many efforts "grass root efforts" (I want some of that "grass") trying to derail this reform and one of them, within the Goggle Ads for health care reform and the Ad will pop up now and then (there is also an Ad For Reform)!


Then, on the other side, is those FOR HEALTH CARE REFROM.
The most disappointing thing I have come to learn from my research, is who actually wrote the HEALTH CARE REFORM bill? Did you think Rep. Maxine Walters did? Or the distinguished congressman from Boston, Mass. who in the past, hired a male hooker to work on his staff, and helped bring down the housing and banking industry through his leadership and fiduciary oversight of FANNIE MAE or FREDDIE MACK? Nope, if only we could be so lucky!


The bill, my friends, all 2000 pages of it, has been written by none other than THE HEALTH CARE LOBBYIEST, THE FOLKS REPRESENTING ALL OF THE GROUPS ABOVE! Why can I say this?



Just take a look at what this does not have:
No Tort (malpractice reform), which in the the heart of ALL major industrialized countries HC system), no lower cost of medicine (stays the same if not higher, and creates a BIGGER DEFICIT, IN THE BILLIONS (I BELIEVE THE TRILLIONS)- (get ready world for more IOU's from us!). Now they are talking "One payer system is out", again, basis for any HC reform! What in the hell do we have in 2000+pages anyway? Why did not one single team go to any country to "better understand what works or doesn't? Hell, if they are afraid of flying, take a road trip to Canada, get some beers along the way, and find out if this thing about 'how bad and getting in lines in Canada is all about'? At least do that, one road trip? Just one?! Nope, why do that when lobbyist know how to do it right!?



Please refer to a past blog entry article I posted on "whether this country is capable of addressing major social and economic issues with the system of government it has?"
Goggle it if you have an interest on my blog.

One of my hobbies, BC (before carcinoid) was world history, especially the rise and falls of world empires....The USA has all the symptoms of an Empire on the downward slide. If you read the "Economist" and other papers from outside the country, the perception, and talk and attitude, is the USA is a falling and failing giant, unable to address its issues and a crumbling empire within! People are looking to China, India, and the EU as places of leadership now.'
http://www.informationclearinghouse.info/article10698.htm

>>Whether its crime (one of the highest in the world per capita, if you exclude the "rainbow nation" South Africa.) 

>>Racial issues which will destroy this country (note, the most powerful leader in the world recently had a "beer summit" due to an arrest of a tricycle riding AA Professor by a Caucasian Policeman. This is not just a black white issue but also Hispanic issue. Instead of working to create the "perfect state" noted by Martin Luther but instead, we are falling apart,  little by little, I think.

>>Budget Deficits- continuing and climbing yearly, without an end in site or how to repay it?
Social Security- currently in a positive position, covering the deficits as it is incorporated within the budget numbers.

However, what does the #1 country do with the SURPLUS it accumulates in SS to help offset and pay when we do not have enough money to pay in the coming decades?
http://usbudget.blogspot.com/2009/03/fiscal-year-2010-budget-overview.html

It purchases Treasury bills, Governments IOU's with nothing backing it up....HI CHINA! We have a TRILLION dollars in these IOU's, which the USA is planning to  cash in, kinda like going to Citibank for a cheap loan! And we plan to use it to pay off the and care for retirees that come into the system when the USA takes on the role of PROTECTOR AND MEDICAL CAREGIVER FOR ELDERLY.....(YES! Sorry to advise you TEA GUYS, THOSE YOU AGAINST REFORM, THE US IS IN THE HEALTH CARE SYSTEM and Manages our health care when we get old!
HOW DO YOU THINK YOUR PAPI GOT HIS HIP REPLACEMENT PAID FOR?!?! OR HIS 4-10 PILLS A DAYS FOR HIS HEATLH??? The fairy god mother? No, the fairy God Uncle Sam....

The economic budget deficit, and now add to the issue the health care reform, we continue spiraling out of control with deficits, which now account for a large % of our overall budget spending! This is called called in business, UNSTAINABLE!

The rest of the world, mainly the poor Chinese, are scared to death, as they hold all this paper called "promissory notes from the USA" in the billions, if not trillions, without anything in site as to how to finally address it (I say give them Hawaii, and East St Louis, and we call it even!).
Meanwhile, we bring in Health Care reform which is noted to drive the deficit even further.....which does not make sense UNLESS THE PROGRAM WAS WRITTEN BY THE HEALTH CARE INDUSTRY ITSELF. HELLO!

IN ALL OTHER INDUSTRILAIZED COUNTRIES, HEALTH CARE REFORM REDUCED THE COST OF HEALTH CARE AND BROUGHT OVERALL SPENDING DOWN. IN THE USA, HEALTH CARE REFORM INCREASES HEALTH CARE SPENDING?!?! Don't tell me it BC we bring in the uninsured? How do they get medical coverage today? They go to hospitals, fake ID and insurance or just go in, and get treated, and its passed on to Gov or to us.....one way or another, WE PAY! Come on down Guatemala!

SCREW IT I SAY! Expand you horizons and at the same time start to practice your Spanish as this in another problem, uncontrolled border management! (now that I think about it, next Germany trip, after my 4 hour "Guantanamo type interrogation" in the Detroit airport customs, I am going to come through Matamoros Mexico, pay someone with a 1974 Station Wagon, w/a big statue of the Virgin Mary on the dashboard, to take me to the border wall, jump it, with my ladder, and I will get back to the USA much quicker....and also, I can pee when I want to!! take that Detroit customs!

So today, I listen to the Mexican electronic music band Moenia, which is actually pretty good, in Spanish, so you can learn the language of our neighbors and new friends......(I am one of them BTW, 50% Cuban...that came to the country in 1964, by all things, A DAMN PLANE! Pan Am freedom flights, they were called back then, after the John Kennedy led "Bay of Pigs" failed invasion 9I should write about that day as I remember it well, mostly picking up bullet shells and finding the treasure of them all, live bullets), when our President, due to this lack of any leadership and focus (I can understand the second part though), failed miserably to do anything, except think about MMonroe singing him "Happy Birthday Mr Prez-E-Dent"............thank god for Catholic confession huh!?!? "Forgive me Father for I have sinned, since my last confession I have......."

Immigration, another unsolvable problem with this country! Throw in terrible leadership (as in Rome in declining days....lets see, republican party, Sarah Palin! P A L I N, selling books, riding snowmobiles, looking hot, looking out her backyard to Russia, learning about foreign affairs, and stuff like that. Yep, there I go again RCG!

Finally, here are the video songs and Spanish lessons for the day from UTUBE
(btw, I am going to create a channel and post it here for carcinoid/kidney and tequila videos and post it on the blog (replace the UTUBE I have):

http://www.youtube.com/watch?v=UmoYAUNmdFo&feature=related

http://www.youtube.com/watch?v=lvy0yAVxN2A&feature=related

http://www.youtube.com/watch?v=5dM5-SKBwkU&feature=related    the best!

Disfrutar los videos!

Para mi amigo(a)s/hermano(a)s de Espana, ojala que puedas bailar esta canciones en los discos de Madrid! Como dicen en tu pais, "que se ojda el Carcinoid de merida"!
Tambien, VIVA mi favorito rey, Juan Carlos de Espana, (de historia, por el, Espana pudo cambiar a un pais democratico, duespes del mi favorito dictator, Franco sin problema...read about this guy...a true hero as much as anybody for what he did the years after Franco and unselfishly turned his country in a democracy!


El Rey de Espana, un hombre honerable y honesto! Y lo mejore, le gusta mandar al loco Chavez de Venezula que se,"cajate la boca, carajo"!
VIVA Espana!--- a si se asi!

Mira, yo soy de decendente Espanol (mis abuelos que fureon a Cuba) y estoy piensando que si esto sigue como vay en EEUU, voy a vivir en Espana! Pienso lo mejor es metirme en unos de los barcos en Africa, que van a las Isla Canarias illegalmente, y me van a tener que acceptar como Espanol cuando llego al terrino! A si tengo seguro de salud por el governor y vivo una vida fantastico! Y espana me accepta, enfermo con cancer y todo! Como hacen a tus nuevos hermanos, por todo Africa que viene en el mismo boate....desde Congo, Senegal,etc! Los nuevos Espanoles, de Africa, y yo tambiem!

To close my dysfunctional bilingual long winded BLOG, Health Care Reform-

Form versus Substance.....
what do you think?

forgive me father for I have sinned, since my last confession I have used the curse word "what the fuck" about 2010 times, more or less,  I have also.....!

AD LINK SUPPORTING HEALTH CARE REFORM (written by health care industry btw)......

This Ad on Goggle is a link SUPPORTING HEALTH CARE REFORM AND LINKS HOW TO WRITE YOU SENATOR IN SUPPORT OF THE 2,000 page, HEALTH CARE INDUSTRY WRITTEN, REFORM!

http://healthcarerepair.org/take-action/?gclid=CPvooufSmp4CFU1M5Qod_08YsQ


I HAVE NO IDEA  WHAT TO SUPPORT!.....

THIS CREATES A DEFICIT WHICH IT SHOULD NOT....! AND I DO NOT THINK ANYONE IN GOVERNMENT AS READ IT....OR VISITED ANOTHER COUNTRY TO STUDY WHAT WORKS OR DOES NOT. THIS IS AN EXAMPLE IN THE "BEST OF DOING SOMETHING THAT TURNS OUT TO BE NOTHING BUT MORE EXPENSE"!

NET, WE EITHER HAVE AN 1) AD/SITE AGAINST HEALTH CARE REFORM OR 2) AD FOR HEALTH CARE REFORM WRITTEN BY THE HEALTH CARE INDUSTRY AND LOBBY.

OH TO BE IN GOVERNMENT AT THIS IMPORTANT TIME, LOW ON MONEY! THAT OR THE REFEREE ON THE FRANCE/IRELAND GAME... OOOHHHHLLLLAAAALLLLAAAA!

NOTE- WHATEVER HAPPENED TO THE 1200 MILE BLACK WALL THAT WAS BEING BUILT TO "KEEP OUT THEM ALIENS" WHO DO MOST OF OUR MANUAL WORK? HOW MUCH HAVE WE SPENT ON THAT THING ANYWAY AND WHERE IS IT?

BOTTOM LINE, I THINK ONE NEEDS TO GO TO MY SUGGESTIONS BELOW, RELATIVE TO WHAT ARE THE BEST NEXT STEPS RELATIVE TO WHAT TO DO W/RARE COSTLY DISEASE
 (MATTER OF FACT, BEST OPTION FOR ME- MARRY A GERMAN CITIZEN, I THINK)......!

IF YOU FIGURE THIS OUT, WRITE ME PLEASE!
ALSO, POINT ME TO WHERE THE "TURTLE TUNNEL #2 IS LOCATED IN THE 2000 PAGES"?

Sunday, November 15, 2009

There have been some GOGGLE ADs w/LINK on this blog stating "HANDS OFF MY HEALTH CARE" and wanting one to click to support rejection for any change!! I DO NOT SUPPORT THIS (HOWEVER, SEE NOTE ON WHO WROTE THE REFORM DOC.)!....Also, I have a link to the HEALTH CARE REFORM WEB SITE!

WHY DON'T THEY TALK TO ME ABOUT DENIALS FROM "MY HEALTH CARE" WHEN I WAS DYING?!

It;s great when the biggest thing you deal with is sinus infection, hang nails and ED dysfunction. The system works great then! Just don't get really sick or wait until the "Government Health Care" system starts protecting you at age 67.5 by the name of Medicare and prescription health care plan. Otherwise, find a good attorney and find out about :
1) living in mobile homes
2) chapter 11 or better 7
3) Eating tuna for dinner in a can
4) Living via denials letters and calls from collection companies wanting "good faith payments"....while you car insurance goes up due to being a "credit risk" and on and on!

"DON'T TOUCH MY HEALTH CARE INSURANCE"?!?!?!

PEOPLE....PAID FOR BY "HEALTH CARE INTERESTS"......


I MAY POST THE DENIAL LETTER FROM MY HEALTH CARE SYSTEM SO WE CAN ALL READ AND SEE WHAT "MANAGEMENT OF YOUR HEALTH" BY THE "HEATHER'S OF INSURANCE COMPANY" ARE ALL ABOUT. DENIED WITH ADVANCED CANCER TO SEE AN OUT OF NETWORK CENTER 2 HOURS FROM MY HOUSE! MY CONDITION WAS NOT "LIFE THREATENING OR SERIOUS" THEREFOR, THEY WAITED, 14 WEEKS......UNTIL I WROTE MY COMPANY AND GOT A FAX APPROVAL THE NEXT DAY...
"KEEP YOU HANDS OFF MY HEALTH CARE"?!?!

PLEASE WRITE THIS FOUNDATION: (http://www.joinpatientsfirst.com/?p=1213#comments)

PAID BY DRUG AND OTHER MD INTERESTS WHICH STAND TO LOSE A LOT OF MONEY IF THE STATUS QUO CHANGES, TO SOMETHING RESEMBLING THE REST OF THE INDUSTRIALIZED WORLD.....

READ MY FRONTLINE POST 2 ENTRIES BELOW......LEARN..

THEN AFTER YELL "DONT TOUCH MY HEALTH CARE"!

> Below is the link to the HEALTH CARE REFORM PROPOSAL...all 1900 pages of it.....its should be 5 pages, basically, take the best of Canada, UK, Germany, Japan, Swiss and Taiwan (perhaps Morocco since they are ahead of us with heath care ratings) and COPY IT!

Warning- I have read some of this mess below including listening to a lot of discussion about "WHO WROTE THIS DOCUMENT"??? There were no congress/senate planes to visit other countries, no tort reform and nor medicine controls...
NET, I THINK, AND SO DO A LOT OF PEOPLE, BELIEVE THE MOST IMPORTANT DOCUMENT/LEGISLATION WAS WRITTEN BY THE DRUG AND PHARMUCITCAL INDUSTRY THEMSELVES......THE WOLF IN THE HEN HOUSE IS WRITING THE "HEALTH CARE REFORM" LEGISLATION!!!!!!

FORGET WHAT I SAID ABOUT SUPPORTING THIS.....NEXT RECO
  • WORK OUT
  • EAT WELL
  • DONT GET CANCER
  • MOVE TO CUBA OR COSTA RICA
  • WHY MOVE, WE ARE IN A MESS AND RECENTLY THE USA PRESIDENT WAS IN ASIA. THE PERCEPTION IS THE USA IS A DYING LEADER OVERALL........IN DEBT TO OUR EYEBALLS AND CAN NOT DEAL WITH ANYTHING THAT DOES NOT HAVE TO DEAL WITH LOBBING A CRUISE MISSLE AT AN ARAB COUNTRY! YOU KNOW, TOUGH TO ARGUE FOLKS....
  • START PRACTICINE SPANISH AS THE "BLACK WALL" IS NOT WORKING I DONT THINK.
BOTTOM LINE, THE DRUG/INSURANCE/MEDICAL INDUSTRY WRITTEN "HEALTH REFORM LAW"...ALL 1900 PAGES OF IT IS BELOW..(SEACH FOR A "TURTLE TUNNEL #2 IN IT, GOT TO BE IN THERE SOMEWHERE!)